Tiny Tickers exists to improve the early detection and care of babies with serious heart conditions.

Every year in the UK, 5,000 babies are born with congenital heart defects (CHD). 3,000 will have a CHD requiring major surgery or a procedure in their first year of life, but less than half of these serious defects are detected before birth on average so many babies are sent home without a diagnosis or appropriate care.

Tiny Tickers is working to improve early detection, so that more heart babies receive the care they need, avoid unnecessary illness and have a chance of a better start in life. Early detection includes improving screening before birth (prenatal CHD screening) and following a Prenatal CHD Pathway, testing for undetected CHD after a baby is born (e.g. Pulse Oximetry) and creating awareness of the signs of undetected heart conditions at home and in the community (Think HEART).

Please help to give every baby the best possible start in life.


On Video: Early detection of congenital heart defects: Jude's story.

Baby Jai's condition was detected before he was born, giving him a better start for his tiny heart. Read his parents' heart-warming account of their family's experience of CHD.

We need as many people as possible to take our quick survey and tell us about their thoughts on and experiences of their 20 week scans! Can you help shape our upcoming new project?

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