Heart problems are the most common congenital birth defect - affecting around one in every 125 babies. Every year in the UK, around 3,000 babies are born with a defect so serious it requires open heart surgery or other procedures in their first year of life.
But fewer than half of these major defects are detected before birth and, while some are picked up during newborn checks in hospital, around 1,000 babies are sent home each year with no one realising they have a life-threatening condition.
Research shows early detection improves a baby's chances of survival, and their long-term quality of life. So our mission is to improve early detection and treatment - to ensure all babies receive the same high quality diagnosis and care, and avoid unnecessary illness.
We work to influence standards; train sonographers who perform pregnancy scans; raise awareness among parents and the public; fund academic research; and help families access to the support they need.