Parents share their experience of congenital heart disease, in words and pictures

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Lexie's story  |  Zach's story

Jai's Story

Jai was born with simple transposition of the great arteries - a life-threatening heart condition.  Fortunately, his heart problem was detected before he was born and he was able to have the best start in life.
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Martha's Story

Martha's parents share their recent experiences - their doubts and fears, their joys and hopes - over the last 12 months. 
Her story is about receiving amazing care - both before and after she was born.
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Harry's Story

Harry's family talks about the amazing and traumatic rollercoaster ride of living with their son's congenital heart disease, with pictures of Harry growing up and doing all the "normal" things in life, and facing the ups and downs of 4 heart operations in 10 years. 
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Lola's Story

Lola's heart condition was discovered before she was born and although her parents have been through nerve-wracking times, Lola is now an inspiration to her friends and family ... 
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Tommy's Story

Tommy's parents share their experiences and feelings about their son Tommy, from the time when they found that he had a severe heart condition, through his first heart surgery at 5 days old and his valiant battle against infection ...
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Domenico's Story

Domenico's parents had many worrying times and difficult decisions before he was born,
but Domenico came through with flying colours. 
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In memory of Alfie

Alfie died suddenly at the age of four weeks from what doctors later discovered was a congenital heart defect.

Thanks to the wonderful generosity of his family, friends, colleagues and the people of the Isle of Man, Tiny Tickers has been able to provide training, both on the Isle and beyond.
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Mollie's Story

Mollie's story is just beginning, but it could have been very different without an antenatal diagnosis.

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In memory of Mary

From 1953, a mother's moving story of her daughter who died at 4 months from a heart defect - at a time when hospital care was very different from today.
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It can be very helpful for families with a heart baby to read about the experiences of others who have been in their shoes. 
If you would like to share your experience on the site please contact us or join us on Facebook.