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Parents share their experience of congenital heart disease, in words and pictures

Harry's Story

Harry's family talks about the amazing and traumatic rollercoaster ride of living with their son's congenital heart disease, with pictures of Harry growing up and doing all the "normal" things in life, and facing the ups and downs of 4 heart operations in 10 years.
Continue to Harry's story

Lola's Story

Lola's heart condition was discovered before she was born and although her parents have been through nerve-wracking times, over the last 2 years, Lola is now a wonderful 3 year old and a inspiration to her friends and family ...
Continue to Lola's story

Tommy's Story

Tommy's parents share their experiences and feelings about their son Tommy, from the time when they found that he had a severe heart condition, through his first heart surgery at 5 days old and his valiant battle against infection ...
Continue to Tommy's story

Domenico's Story

Domenico's parents had many worrying times and difficult decisions before he was born,
but Domenico came through with flying colours.
Continue to Domenico's story

In memory of Alfie

Alfie died suddenly at the age of four weeks from what doctors later discovered was a congenital heart defect.

Thanks to the wonderful generosity of his family, friends, colleagues and the people of the Isle of Man, Tiny Tickers has been able to provide training, both on the Isle and beyond.

Continue to Alfie's page

In memory of Mary

From 1953, a mother's moving story of her daughter who died at 4 months from a heart defect - at a time when hospital care was very different from today. Continue to Mary's story

If you have experiences of congenital heart disease that you would like to share, please contact us.

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