• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
Donate now
  • About Tiny Tickers
  • Media Centre
  • Contact Us
Tiny Tickers

Tiny Tickers

Donate now
  • Support & Info
        • Support & Info

          Wherever you are on your journey, we’re here to offer the support and information you need.

          Find out more
        • What is Congenital Heart Disease?
        • Family Support
        • Are you pregnant?
        • Are you pregnant?
        • Just had a baby?
        • Has your baby got a heart defect?
        • Think HEART
        • Bereavement
        • Useful Resources
  • Professionals
        • Professionals

          We are here to help healthcare professionals improve the detection and treatment of congenital heart defects.

          Find out more
        • Sonographer Cardiac Training
          Our trainer, Niki, with sonographers from Russell Hall Hospital
        • Training services
        • Tiny Tickers' Yorkshire Sonographer Training Project to detect heart conditions
        • Training Resources
        • Cardiac Resources
        • The first Tiny Tickers funded pulse oximetry machine, at Good Hope Hospital
        • Pulse Oximetry Resources
        • Think HEART & Think 20
        • Resources Order Form
  • Get Involved
        • Get Involved

          Whatever your skills and interests, there is a way for you to make a difference to babies with heart problems.

          Find out more
        • Donate
        • Donate
        • Give a gift in your will
        • Our Appeals
        • Challenge events
        • Corporate Support
        • Fundraise
        • Share Your story
        • Play our lottery
  • Blogs and News
  • Your Stories
  • About Tiny Tickers
        • Our Work
        • Our Plans & Ambitions
        • How We Are Funded
        • Meet Team Tiny Tickers
        • Join Our Team
        • Our Values
        • Tiny Tickers’ Annual Reports
  • Media Centre
        • Brand Guidelines
        • CHD Statistics and Research
        • Family Stories
  • Contact Us
You are here: Home / Your Stories / Jai’s story 

Jai’s story 

7th October 2015 in Your Storiestransposition of the great arteries

“At our 20 week scan, the sonographer said that she couldn’t see the right images of Jai’s heart and we were asked to have a further examination. Naturally we were confused and worried that there was a serious problem.

DSC00067We were informed that there was a strong likelihood that our baby had a congenital heart condition and we returned the following day to meet the fetal heart specialist, who confirmed that our baby had a condition called ‘simple transposition of the great arteries’.

Essentially, without corrective surgery our baby had very little chance of survival. This was a huge shock for my husband and I, and it took a few days to comprehend the news.

Over the following weeks and months, we met regularly with the team at the maternity hospital and at the cardiac hospital for ultrasound scans and to plan the care that our baby would receive following birth.

We were able to visit the ward at the cardiac hospital and meet the consultants in advance enabling us to come to terms with what would happen in the weeks following the birth of our baby.

Our son was born in the maternity hospital with the full team on standby ready to provide him with the care he needed from the second he arrived.  He underwent his first procedure just 3 hours after birth and was stabilised in the neonatal unit before being transferred to the cardiac hospital.

At just six days old, he underwent a 10 hour operation to correct the flow of blood to his heart. The following days and weeks were traumatic as we waited to see if the operation had been a success. The staff were extraordinary, they worked tirelessly and were incredibly supportive.

Our son is now 14 years old and an incredibly healthy, wonderful child who can be treated as a normal boy.  My husband and I know that although the experience was traumatic, having the knowledge that there was a problem with our baby’s heart before birth, and being able to mentally prepare for what lay ahead, had a huge impact on our ability to cope with the situation and make the right decisions for us and our baby.

We are forever indebted to the teams at the maternity hospital for identifying the problem and at the cardiac hospital for their skills and expertise.”

Rajni & Ian (Jai’s parents)

  • Click to share on Twitter (Opens in new window)
  • Click to share on Facebook (Opens in new window)

Related

Primary Sidebar

Blogs

  • The Hebridean Way is “mostly flat”
  • The journey of a heart parent
  • Sandie and Sonny are running for tiny hearts
  • Top Ten Fundraising Ideas For Kids
  • How our pulse oximetry project is saving lives
See all Blogs

Your Stories

  • Harrison’s Story
  • SVT and Aortic Stenosis: Arthur’s Story
  • VSD (Ventricular Septal Defect): George’s Story
  • Patent Ductus Arteriosus (PDA) and Aortic Stenosis: Emilia’s Story
  • Our heart defects: A father and son’s story
See all Your Stories

News

  • The Congenital Heart Disease Priority Setting Partnership: a national strategy to address priorities for children and adults with CHD
  • Tiny Tickers places its 500th pulse oximetry machine
  • Make Some Noise for tiny hearts
  • Amazon Smile Update 2023
  • INEOS staff cycle miles for tiny hearts
See all News

More about...

3vt (1) 20 week scan (1) Adult CHD Stories (6) ASD (13) AVSD (8) cardiac (1) Coarctation of the Aorta (36) collapsed aortic valve (1) congenital heart defects (3) congenital heart disease (3) Congenitally Corrected Transposition (4) Critical Aortic Stenosis (4) Double Outlet Right Ventricle (5) Ebstein's Anomoly (2) hypoplastic aortic arch (3) hypoplastic left heart syndrome (8) hypoplastic right heart syndrome (2) Loss (23) Mitral Valve Regurgitation (1) nominate (1) Parents Blog (15) Patent Ductus Arteriosis (3) PDA (2) pulmonary atresia (6) pulmonary stenosis (2) Pulmonary Valve Stenosis (2) research (1) shone's complex (1) sonographers (2) sonographer training (2) support (1) Supraventricular Tachycardia (3) SVT (1) TAPVC (1) Test for Tommy (5) Tetralogy of Fallot (22) tiny hearts (1) Total Anomalous Pulmonary Venous Connection (TAPVC) (1) transposition of the great arteries (44) tricuspid atresia (2) Truncus Arteriosus (4) Vlogs (2) VSD (40) win (1) yorkshire (1)

Footer

  • Facebook
  • Twitter
  • Instagram

Make a donation

Help us provide a better start for tiny hearts. Make a single or regular donations to help babies with heart defects have a fighting chance.

Donate now

Subscribe to our newsletter

You can change your email preferences at any time. Read how we keep your data safe in our Privacy Policy. 

  • Accessibility
  • Privacy policy
  • Terms and conditions
  • Fundraising Complaints Policy

© 2023 Tiny Tickers • Registered Charity No: 1078114

 

Loading Comments...
 

You must be logged in to post a comment.