Help us change DLA for CHD patients

On Tuesday 29th November, we’ll be joining forces with other congenital heart charities to urge MPs to help us improve access to Disability Living Allowance (DLA) for CHD patients.

The national coalition of CHD charities – which includes Tiny Tickers – believe some patients may be being turned down for DLA partly because CHD is not given a place in the guidance used by assessors.

While other conditions are given prominence in the guidance, CHD is not covered – and we’re working with other charities to try to change that.

On the 29th we’ll be hosting a meeting in Parliament to tell MPs and Peers our concerns and ask them to support our campaign – and we need your help. Please consider emailing your MP to ask them to attend the meeting, and then also helping by sharing our campaign Tweets and Facebook from next Tuesday.

You can find out who your MP is, and their email address, here. You can find an example of the kind of letter you may wish to email to your MP here: parent-mp-invite-sample – including more details of the meeting. We’d like as many MPs to attend as possible.

If you have any questions about this campaign, please contact us via Thank you for your support!