Critical Aortic Stenosis – Lennox’s Story

By the time Lennox’s heart condition, Critical Aortic Stenosis, was diagnosed, doctors had been working for two hours to save hime. Lennox’s mum, Danielle, is forever grateful she trusted her instincts when she first felt something wasn’t right with her baby. This is their story:

Critical Aortic Stenosis LennoxAfter a lovely ‘normal’ pregnancy and birth we got to take our gorgeous 7lb 4oz baby boy home! On day three, I noticed something wasn’t right with Lennox. I couldn’t tell you what it was, but I just knew something wasn’t ok.

We called the birthing centre and were told to take Lennox to A&E as he sounded dehydrated. We arrrived at Southampton General Hospital and he was treated for around two hours for dehydration. I was expressing milk and this was then given to Lennox via syringe.
The doctor came over and watched Lennox breathing. I remember saying to my husband that the doctor was scaring me. I knew something was wrong.

The doctor explained that she thought Lennox had an infection. They started a broad-spectrum antibiotic right away. A few moments later, the head paediatrician came to assess Lennox. He was working so fast on our tiny baby and our husband asked what was happening. He said, ‘Your baby is very sick, and I need to work fast.’

Critical Aortic Stenosis LennoxFrom that moment everything was a blur…they rushed Lennox to a resuscitation room, where doctors swarmed around him. They performed an echo scan and I heard the word ‘cardiac’ being shouted.

My husband and I stood watching in absolute horror. We were then told to give Lennox a kiss and go to the family room as he had to have a central line and be put to sleep.

We called our family and were taken up to a different room outside PICU. The consultant came in and explained that for two hours they had been saving Lennox’s life. His blood acid levels were really high, and his tiny organs were failing.

We waited another few hours until Lennox was stable and then we were told that he had a condition called Critical Aortic Stenosis. He needed an operation that night to balloon open his valve.

Critical Aortic Stenosis LennoxLennox was too poorly to have the operation that night, but he had it the next day. We were in hospital for 10 days. This was the scariest time of our lives and we are so very grateful for everyone who helped save his life. We really don’t know how to thank everyone.

Lennox is now six months old. He is well and thriving. He had open heart surgery at eight weeks old and will need more operations in the future.

I wanted to share my story as I hope that it can help other families – we had no idea our baby had a heart condition and it came so close to taking him. Always trust your instincts!!