Acer’s Story: Part Two
Acer was born with Congenitally Corrected Transposition of the Great Arteries. Here his mum, Katie, shares an update on her son’s journey. You can read the first part of Acer’s story here.

Since the last time we shared our story, it’s been a whole nine months, would you believe it?! And what an incredible nine months it has been. Acer continues to go from strength to strength, smashing the expected time limits by months.
We left the hospital on 2nd July 2019 and within the next couple of months Acer went on his first family holiday with us, multiple days out and met the rest of his family, who had been unable to visit us in Birmingham. He was able to stop all medication after a few months. Even with these exciting times, we still have monthly check-ups at the children’s hospital.
Every month the check-ups are positive. Acer continues to have oxygen saturation of 85% and above and ECGs show no further problems. The expected time for his Glenn procedure was four to six months of age, whereas he’s now ten months old and is still yet to need any interference. His medical team are looking at booking him in next month.

At 9am we were taken to the anaesthetist, who calmly put him under and we were given a time scale of an hour and a half until he’d be back on the ward. When we saw Acer afterwards it was a pleasant surprise; other than a little groggy he was perfectly happy. The doctor who performed the procedure came to tell us that Acer had gone into heart block for eight minutes and managed to bring himself back around without any complications.
After four hours monitoring to check he was back to his normal, happy self we were allowed to return home. Since then we haven’t had a check-up due the the current coronavirus circumstances, but have one booked at the end of April. We’re not sure if it will go ahead.

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