• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
Donate now
  • About Tiny Tickers
  • Media Centre
  • Contact Us
Tiny Tickers

Tiny Tickers

Donate now
  • Support & Info
        • Support & Info

          Wherever you are on your journey, we’re here to offer the support and information you need.

          Find out more
        • What is Congenital Heart Disease?
        • Family Support
        • Are you pregnant?
        • Are you pregnant?
        • Just had a baby?
        • Has your baby got a heart defect?
        • Think HEART
        • Bereavement
        • Useful Resources
  • Professionals
        • Professionals

          We are here to help healthcare professionals improve the detection and treatment of congenital heart defects.

          Find out more
        • Sonographer Cardiac Training
          Our trainer, Niki, with sonographers from Russell Hall Hospital
        • Training services
        • Tiny Tickers' Yorkshire Sonographer Training Project to detect heart conditions
        • Training Resources
        • Cardiac Resources
        • The first Tiny Tickers funded pulse oximetry machine, at Good Hope Hospital
        • Pulse Oximetry Resources
        • Think HEART & Think 20
        • Resources Order Form
  • Get Involved
        • Get Involved

          Whatever your skills and interests, there is a way for you to make a difference to babies with heart problems.

          Find out more
        • Donate
        • Donate
        • Give a gift in your will
        • Our Appeals
        • Challenge events
        • Corporate Support
        • Fundraise
        • Share Your story
        • Play our lottery
  • Blogs and News
  • Your Stories
  • About Tiny Tickers
        • Our Work
        • Our Plans & Ambitions
        • How We Are Funded
        • Meet Team Tiny Tickers
        • Join Our Team
        • Our Values
        • Tiny Tickers’ Annual Reports
  • Media Centre
        • Brand Guidelines
        • CHD Statistics and Research
        • Family Stories
  • Contact Us
You are here: Home / Your Stories / Acer’s Story: Part Two

Acer’s Story: Part Two

22nd April 2020 in Your StoriesCongenitally Corrected Transposition

Acer was born with Congenitally Corrected Transposition of the Great Arteries. Here his mum, Katie, shares an update on her son’s journey. You can read the first part of Acer’s story here.

Congenitally Corrected Transposition of the Great Arteries: Acer’s StoryHey everyone it’s Katie and Acer again, here to continue spreading our experience.

Since the last time we shared our story, it’s been a whole nine months, would you believe it?! And what an incredible nine months it has been. Acer continues to go from strength to strength, smashing the expected time limits by months.

We left the hospital on 2nd July 2019 and within the next couple of months Acer went on his first family holiday with us, multiple days out and met the rest of his family, who had been unable to visit us in Birmingham. He was able to stop all medication after a few months. Even with these exciting times, we still have monthly check-ups at the children’s hospital.

Every month the check-ups are positive. Acer continues to have oxygen saturation of 85% and above and ECGs show no further problems. The expected time for his Glenn procedure was four to six months of age, whereas he’s now ten months old and is still yet to need any interference. His medical team are looking at booking him in next month.Congenitally Corrected Transposition of the Great Arteries Acer

Congenitally Corrected Transposition of the Great Arteries: Acer’s StoryAt the end of February, Acer has his first cardiac catheter. This was a scary time, due to him having a high chance of going into heart block and potentially needing a pacemaker. He was admitted on the Thursday afternoon, ready for the procedure on the Friday morning.

At 9am we were taken to the anaesthetist, who calmly put him under and we were given a time scale of an hour and a half until he’d be back on the ward. When we saw Acer afterwards it was a pleasant surprise; other than a little groggy he was perfectly happy. The doctor who performed the procedure came to tell us that Acer had gone into heart block for eight minutes and managed to bring himself back around without any complications.

After four hours monitoring to check he was back to his normal, happy self we were allowed to return home. Since then we haven’t had a check-up due the the current coronavirus circumstances, but have one booked at the end of April. We’re not sure if it will go ahead.

Congenitally Corrected Transposition of the Great Arteries AcerDespite all of the positives, it’s still scary. Dean and I still worry about his heart rate, I check his temperature religiously “just in case” and I think it’s going to be that way for a very long time. Going through all of this is a lot harder than it looks to others from the outside, but I wouldn’t change it for the world. Our little family can get through this and so can many others, especially with support groups such as Tiny Tickers who work hard for families like mine. I can’t wait to update you all on our future and Acer’s journey will continue to be documented. Thank you for reading.

 

  • Click to share on Twitter (Opens in new window)
  • Click to share on Facebook (Opens in new window)

Related

Primary Sidebar

Blogs

  • The Hebridean Way is “mostly flat”
  • The journey of a heart parent
  • Sandie and Sonny are running for tiny hearts
  • Top Ten Fundraising Ideas For Kids
  • How our pulse oximetry project is saving lives
See all Blogs

Your Stories

  • Harrison’s Story
  • SVT and Aortic Stenosis: Arthur’s Story
  • VSD (Ventricular Septal Defect): George’s Story
  • Patent Ductus Arteriosus (PDA) and Aortic Stenosis: Emilia’s Story
  • Our heart defects: A father and son’s story
See all Your Stories

News

  • The Congenital Heart Disease Priority Setting Partnership: a national strategy to address priorities for children and adults with CHD
  • Tiny Tickers places its 500th pulse oximetry machine
  • Make Some Noise for tiny hearts
  • Amazon Smile Update 2023
  • INEOS staff cycle miles for tiny hearts
See all News

More about...

3vt (1) 20 week scan (1) Adult CHD Stories (6) ASD (13) AVSD (8) cardiac (1) Coarctation of the Aorta (36) collapsed aortic valve (1) congenital heart defects (3) congenital heart disease (3) Congenitally Corrected Transposition (4) Critical Aortic Stenosis (4) Double Outlet Right Ventricle (5) Ebstein's Anomoly (2) hypoplastic aortic arch (3) hypoplastic left heart syndrome (8) hypoplastic right heart syndrome (2) Loss (23) Mitral Valve Regurgitation (1) nominate (1) Parents Blog (15) Patent Ductus Arteriosis (3) PDA (2) pulmonary atresia (6) pulmonary stenosis (2) Pulmonary Valve Stenosis (2) research (1) shone's complex (1) sonographers (2) sonographer training (2) support (1) Supraventricular Tachycardia (3) SVT (1) TAPVC (1) Test for Tommy (5) Tetralogy of Fallot (22) tiny hearts (1) Total Anomalous Pulmonary Venous Connection (TAPVC) (1) transposition of the great arteries (44) tricuspid atresia (2) Truncus Arteriosus (4) Vlogs (2) VSD (40) win (1) yorkshire (1)

Footer

  • Facebook
  • Twitter
  • Instagram

Make a donation

Help us provide a better start for tiny hearts. Make a single or regular donations to help babies with heart defects have a fighting chance.

Donate now

Subscribe to our newsletter

You can change your email preferences at any time. Read how we keep your data safe in our Privacy Policy. 

  • Accessibility
  • Privacy policy
  • Terms and conditions
  • Fundraising Complaints Policy

© 2023 Tiny Tickers • Registered Charity No: 1078114

 

Loading Comments...
 

You must be logged in to post a comment.