Zach’s DORV was diagnosed at the 20-week-scan. His mum, Nicola, tells their story:
My surprise youngest, Zach, was diagnosed at our 20-week-scan and we were immediately referred for further scans. We were met by the Fetal Medical Team and Zach was diagnosed with Transposition of the Great Arteries (TGA) and Double Outlet Right Ventricle (DORV).
We were put in immediate contact with the cardiac team, who supported us and prepared us for the future, which was uncertain as they couldn’t give a 100% diagnosis.
When Zach was born, my older children moved into my mum’s house, as we expected to be hospitalised for 6-8 weeks in London, 40 miles from home.
Zach was born in January 2017. We were told he didn’t have TGA, but had a non committed VSD with his DORV.
He thrived for a few weeks before the heart failure kicked in and we were quickly admitted for palliative surgery, while Zach grew bigger for his big repair.
Without knowing about his heart issues before he was born, we wouldn’t have known the signs of heart failure, and I think we would have lost Zach.
Also, because of the early preparation we got from the hospital before he was born, we were able to prepare our other children and ourselves for, what was a year long battle, to keep Zach well before his repair.
He is now thriving and although will need more surgery as he grows, we are so positive about his future and thankful for his early intervention and care.
Find out more about DORV here.
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