Jan 2016 was the best and toughest time in my life! Sonny rushed into the world and my heart grew with love – but I knew something wasn’t right! No-one would believe me… You don’t have enough milk! He’s a colicky baby! Maybe he’s allergic to dairy? Maybe he’s got reflux! Maybe! Maybe! Until one day, a GP listened!
Sonny was diagnosed with coarctation of the aorta when he was three-weeks-old, and in severe heart failure, with lots of fluid in his lungs. We were rushed to hospital for emergency heart surgery. Isolated in a city, with no family or friends, and his dad working between visits – I was absolutely terrified I was going to lose him!
At five-weeks-old he underwent his operation – it was the longest nine hours of my life. Nothing prepares you for seeing your perfect baby, intubated on intensive care ,and then on HDU, drugged on morphine. His surgeons words were, “Such a severe narrowing, I don’t know how he’s made it to five-weeks-old.” My boy is a warrior, the strongest person I know!
I didn’t know about Tiny Tickers then, I found them by chance while Sonny was recovering. They are a fabulous charity that raises awareness of congenital heart disease (CHD) and supports families from diagnosis, through surgery and recovery. Sadly not all babies and families are as fortunate as us, and Tiny Tickers also provides support to families of heart warriors who gain their heaven wings sooner than they should.
I’ve been injured recently, but am determined to recover and get back to distance. I’m so honoured to be running for Tiny Tickers again and can’t wait to take on the Great North Run. It won’t be fast! It won’t be pretty! But Sonny’s courage at five-weeks-old is what will get me round!
Sonny has been Parkrunning since four-months-old – first in the buggy, then at junior and now he’s only 12 Park Runs away from 50!
Find out how you can run for tiny hearts here.