At Holly’s 20-week scan, she was told something wasn’t right with her daughter’s heart. Once Isla was born, it was confirmed she had Tetralogy of Fallot (TOF). Holly shares their story, here:
We found out about our little girl’s special heart at our 20-week scan. We were then referred to a larger hospital and had a more in-depth scan performed by their fetal medicine unit, who told us they thought our baby had Tetralogy of Fallot (TOF).
Following this scan, we were taken into a private room and told about the complications Isla would face when born. We were offered three options: to stop the pregnancy, to have fluid taken from the womb to detect if Isla may have Down syndrome (but risk miscarrying), or to carry on like normal.
When leaving the hospital on that day, everything felt silent. I felt as though I was mourning a baby, who was happily kicking away in my tummy.
We decided we didn’t want to take the test, we just wanted to keep Isla safe and remain positive until she was ready to make her appearance.
On the 28th of June, the most beautiful little girl was born – with so much hair, nobody could believe it! We held our little girl for a second before she was taken away to the Intensive Care Unit (ICU), where our heart journey would begin.
It was confirmed that Isla had TOF. This resulted in her having keyhole surgery at two months old, and open heart surgery at five months old to repair her heart. Isla was a warrior throughout.
At some point in the future, Isla will need another open heart surgery when her body requires it.
Isla is the strongest most beautiful little girl, and we are all so proud of her strength. Medical mums and dads – we are all in this together and we will always fight strong for our warriors. As much as trauma affects us, we keep going for our beautiful heart warriors.