by Karen Morgan “The world breaks everyone, and afterward, some are strong at the broken places.”– Ernest Hemmingway In the UK around 1 in 125 babies are born with congenital heart disease (CHD). I don’t know about you, but that’s a higher number than I expected. Sometimes it’s even phrased as ‘the most common congenital…
And why I created a free app to help families like mine by Jessica Barker, mum of Maisie and Florence, and founder of Friendili. Having a baby is exciting – particularly when it’s your first. Reading about parenthood, going to antenatal classes and carefully choosing all the things for the nursery are all part of…
By Jennie Jones This story is about how we helped our son Rhys to prepare for his last operation and also advice for other parents who have school age children who are preparing for surgery. This is Rhys. He is eight years old and, like any heart parent, we think he’s amazing and a super…
By our Head of Training, Anne Rhodes. One group of health professionals that are quietly, and constantly on the frontline of CHD treatment, care and support are the Cardiac Nurse Specialists (CNS). CNS’s are teams of experienced paediatric cardiac nurses who can support families with an antenatal diagnosis. They often work in very difficult and…
By Sophie Williams My son Tomasz was born in 2018 with Transposition of the Great Arteries. He was treated at Alder Hey Hospital and spent almost eight weeks there. He is now a happy little two year old. Here is what present-day-me would say to comfort myself after my 20 week scan.
Rachael and Steph from SWiRL, a company that supports those with special educational needs, processing disorders and medical conditions to access swimming, discuss the benefits of swimming for children with heart conditions.
