Blog

Right Now: Congenital heart disease has not stopped because of the pandemic

By Tiny Tickers CEO, Jon Arnold On the 17th February 2021, hundreds of charities, including Tiny Tickers, are backing the Right Now #nevermoreneeded Campaign and calling on the government to create an Emergency Support Fund for the third sector. Right now, charities are doing everything they can to make a difference, but resources are running…

Fundraising from your sofa…

Here Katie, our Head of Fundraising and Comms, talks about some other ideas if your fundraising plans have been postponed or cancelled. All of these can be done from home, and from the comfort of your sofa!

CHD doesn’t go away during a pandemic, so neither do we

By Tiny Tickers CEO, Jon Arnold There’s a famous scene in Finding Nemo where Dory calls Marlin “Mr Grumpy Gills” and asks him “when life gets you down, you know what you got to do?”. The answer, of course, is to “just keep swimming” and, ever since we first watched the movie, it’s been something…

Don’t lose sight of your mental health. It is important. YOU are important.

by Karen Morgan “The world breaks everyone, and afterward, some are strong at the broken places.”– Ernest Hemmingway In the UK around 1 in 125 babies are born with congenital heart disease (CHD). I don’t know about you, but that’s a higher number than I expected. Sometimes it’s even phrased as ‘the most common congenital…

Our Journey with Hypoplastic Left Heart Syndrome

And why I created a free app to help families like mine by Jessica Barker, mum of Maisie and Florence, and founder of Friendili. Having a baby is exciting – particularly when it’s your first. Reading about parenthood, going to antenatal classes and carefully choosing all the things for the nursery are all part of…

Surgery, scrap-booking and a six year old superhero

By Jennie Jones This story is about how we helped our son Rhys to prepare for his last operation and also advice for other parents who have school age children who are preparing for surgery. This is Rhys. He is eight years old and, like any heart parent, we think he’s amazing and a super…