Chief Executive’s blog

Test for Tommy – big ambitions for tiny hearts

It’s a week on from the launch of our Test For Tommy appeal – and, thanks to the generosity of our supporters, in just seven days we’ve raised enough to add to the 70 pulse oximetry testing machines we’ve already funded in the UK. I’ve been moved by the donations, the messages of support, and…

The Pulse Oximetry Test: For Every Tiny Ticker

Imagine if you were about to have a baby. Now imagine you’d heard that there was a test that could be done on all newborn babies, that was quick, easy and painless, which could help detect potentially life-threatening heart disease. You’d want your baby to have that test, wouldn’t you?

Why Tiny Tickers’ volunteers are priceless…

‘Would you consider becoming a Trustee?’, I was asked. Pretty much on the spot I said yes. One of the best decisions I ever made, and one that led to my role at Tiny Tickers a few years later. Others might not find that volunteering for a charity has quite the same career-changing impact on…

Let’s make DLA fair for heart children

Every year thousands of babies are born in the UK with congenital heart defects. Others develop heart disease during childhood. I think most people would recognise that these children have a disability. Even once they’ve had the surgery or surgeries they need, many of these children will continue to live with the affects of their…

Just keep swimming…

Staring at the fish-filled wallpaper in the children’s outpatients waiting room today, I was reminded of a quote from Dory in Finding Nemo (which I know shouldn’t be one of the favourite films of a man my age but it is, okay, it just is) – “When life gets you down, do you wanna know…