Chief Executive’s blog

The Pulse Oximetry Test: For Every Tiny Ticker

Imagine if you were about to have a baby. Now imagine you’d heard that there was a test that could be done on all newborn babies, that was quick, easy and painless, which could help detect potentially life-threatening heart disease. You’d want your baby to have that test, wouldn’t you?

Why Tiny Tickers’ volunteers are priceless…

‘Would you consider becoming a Trustee?’, I was asked. Pretty much on the spot I said yes. One of the best decisions I ever made, and one that led to my role at Tiny Tickers a few years later. Others might not find that volunteering for a charity has quite the same career-changing impact on…

Let’s make DLA fair for heart children

Every year thousands of babies are born in the UK with congenital heart defects. Others develop heart disease during childhood. I think most people would recognise that these children have a disability. Even once they’ve had the surgery or surgeries they need, many of these children will continue to live with the affects of their…

Just keep swimming…

Staring at the fish-filled wallpaper in the children’s outpatients waiting room today, I was reminded of a quote from Dory in Finding Nemo (which I know shouldn’t be one of the favourite films of a man my age but it is, okay, it just is) – “When life gets you down, do you wanna know…