Parents & Guest blog

Transposition of the Great Arteries – Rory’s Story

Identified at his 20-week scan, Rory was diagnosed with Transposition of the Great Arteries, Ventricular Septal Defect and Double Outlet of the Right Ventricle. When he was born, doctors also discovered he had a Pulmonary Stenosis and Dextrocardia. Here his mum, Hannah, tells their story and we share her exciting project to raise money for other…

Blogging our way through CHD

In her second NICU Awareness Month post, our guest blogger, Vicki Cockerill, tells us how writing and blogging helps her through her son, Elijah’s, CHD journey. She also has some invaluable advice about setting up and managing a blog:

The Honest Confessions of being a NICU MUM

Introducing our guest blogger, Vicki Cockerill, author of The Honest Confessions of a Nicu Mum blog. Her eldest son, Elijah, was born with Tetralogy of Fallot and had open heart surgery when he was six moths old. This September, during NICU Awareness Month, Vicki is raising awareness by sharing her experiences on our blog. In her first post, she…

Ebstein’s Anomaly – Grace’s Story

Grace was diagnosed with a serious form of Ebstein’s Anomaly at her mum, Aimee’s, 20 week scan. Sadly, she passed away soon after birth, but her parents are forever grateful to the sonographer who spotted her heart defect. Without the early detection, Grace wouldn’t have made it to birth. This is their story:

Endocardial Fibroelastosis – Eadie’s Story

When Eadie was born, she seemed perfectly happy and healthy. However, three months later her parents were left devastated when she passed away suddenly. Here her mum, Carina, talks about their traumatic journey and Eadie’s eventual diagnosis of Endocardial Fibroelastosis: