Your Stories

Double Outlet Right Ventricle: Zach’s Story

My surprise youngest, Zach, was diagnosed at our 20 week scan and we were immediately referred to UCL for further scans. We were met by the foetal medical team and GOSH a week later and Zach was diagnosed with Transposition of the Great Arteries (TGA) and Double Outlet Right Ventricle (DORV). We were put in…

Transposition of the Great Arteries: Elsie’s story

Elsie’s heart defect, Transposition of the Great Arteries, wasn’t detected until she was critically ill. A month after her birth, Elsie’s mum, Becky, was admitted to hospital for post birth complications. Had this not occurred, Elsie may not be here today. Here, her dad Damian tells their emotional story:

Hyper plastic left ventricle: Henry’s Story

At her 20 week scan, Rachael discovered her baby had a congenital heart defect, hyperplastic left ventricle. Here she gives a very moving account of Henry’s journey – from pregnancy to surgeries and recovery.