Your Stories

Tetralogy of Fallot: Rafe’s Story

Tetralogy of Fallot: Rafe

Rafe’s heart condition, Tetralogy of Fallot (TOF), was diagnosed at Catherine’s 20-week scan. She has recorded their story in three parts, which you can watch below. You can find out more about Tetralogy of Fallot here. Part One: Diagnosis Part Two: Birth and Before Surgery Part Three: Surgery and Beyond

Transposition of the Great Arteries and VSD: Oscar’s Story

Rosanna and Adam’s son, Oscar, was diagnosed with transposition of the great arteries (TGA) before he was born. The early detection meant he received life-saving treatment as soon as he arrived. This is his story, told by Rosanna: During our 20-week scan, we were excited to find out the gender of our baby. All was…

VSD: Austin’s Story

After a normal birth, Austin appeared to be perfectly healthy. But when he struggled to feed and didn’t gain weight, his parents knew something wasn’t right. He was eventually diagnosed with VSD (ventricular septal defect). Liam tells their story:

VSD: Bonnie-Rose’s Story

Bonnie-Rose was diagnosed with a VSD (hole in her heart) when she was one month old. Here, her mum Kelly tells their story: