Your Stories

Lucca’s Story

Coarctation of the Aorta Lucca

Lucca was diagnosed with a thickened tricuspid valve at mum, Laura’s, 20 week scan. On the day he was born, doctors discovered he had an ASD, bicuspid aortic valve and dysplasia tricuspid valve. Then, at just 12 days old, Lucca was diagnosed with coarctation of the aorta when he became critically ill very quickly. This…

Millie’s Story

Millie’s heart condition was detected at her 20-week scan and she had surgery soon after birth. But post-surgery infections were too much for her body to handle and, tragically, she passed away when she was one month old. Here, her mum Sam tells their story:

Tetralogy of Fallot: Roxy’s Story

Tetralogy-of-Fallot-Roxys-Story-2

Rebecca found out that her daughter had a heart condition, Tetralogy of Fallot (TOF) at her 20 week scan. Roxy was born during the coronavirus pandemic. This is their story: