Your Stories

Coarctation of the Aorta: Finn’s Story

Jessica’s baby boy, Finn, was diagnosed with Coarctation of the Aorta and a VSD before he was born. Jessica will always be grateful for the sonographer who spotted something was wrong with Finn’s heart at her 20 week scan. This is their story:

Hypoplastic Left Heart Syndrome: Ellis’ Story

When Ellis was born, no-one knew only half of his heart was working. When mum, Chelcie, became concerned, Ellis was rushed to the doctor and diagnosed with hypoplastic left heart syndrome (HLHS). This is their story:

CAVSD: Sienna’s Story

Sienna’s congenital heart defect, CAVSD, was diagnosed at her 20 week scan. Here, her mum Natalie shares their story

Hypoplastic Left Heart Syndrome: Edison’s Story

Edison’s heart condition, Hypoplastic Left Heart Syndrome, was diagnosed before he was born. He arrived during the coronavirus pandemic and is now awaiting his second open heart surgery. His mum, Navarna, tells their story so far:

Pulmonary Stenosis: Zareenah’s Story

Zareenah’s heart condition, pulmonary stenosis, was diagnosed at mum, Homaira’s 20 week scan. After she was born, doctors discovered Zareenah also had a VSD and an ASD. This is her story:

Transposition of the Great Arteries: Bertie’s Story

Bertie’s heart conditions, Transposition of the Great Arteries (TGA) and a Ventricular Septal Defect (VSD) were diagnosed at his 20 week scan and he was born during the coronavirus pandemic. Here his dad, James, tells their story: