Your Stories

Truncus Arteriosus: James’ Story

Laura received the devastating news that her baby had a serious heart condition, Truncus Arteriosus, at her 20 week scan. Here she shares James’ story:

AVSD & PDA: Grace’s Story

Though Grace was a happy, seemingly well baby, her mum Georgina grew increasingly worried when she didn’t put on weight, despite having a very good appetite. She was finally diagnosed with Patent ductus arteriosus (PDA) and an atrioventricular septal defect (AVSD). This is their story: ​​On January 20th 2019, we left hospital with our daughter,…

VSD & ASD: Mercie’s Story

Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:

Acer’s Story: Part Three

Acer was born with Congenitally Corrected Transposition of the Great Arteries (read the first part of his story here). In this third update, Katie shares the next part of their journey.