Your Stories

Ebstein’s Anomaly: Esme’s Story

Esme’s heart condition, Ebstein’s Anomaly, wasn’t detected during Stacey’s pregnancy. Esme appeared to be perfectly healthy after birth, but a routine pulse oximetry test showed that her blood oxygen level was low. This resulted in her referral and speedy diagnosis:

TAPVC: Oscar’s Story

Soon after birth, a pulse oximetry test detected Oscar’s SATS were low, and this led to him being diagnosed with total anomalous pulmonary venous connection (TAPVC). His mum, Clare, tells his story:

Pulmonary Atresia: Leo’s Story

Soon after he was born, Leo had a pulse oximetry test, which showed his blood oxygen level was very low. The quick, painless and simple test started the chain of events that went on to save his life. His mum Emma tells his story:

Noel’s Story

When he was born, Jemma’s son, Noel, appeared to be perfectly healthy. Although a heart murmur was detected, there were no other concerns. Tragically, he passed away suddenly at eight weeks old. Here, Jemma tells their story:

Oscar’s Story

At her 12 week scan, Liz was surprised to find out she was expecting twins. Her 20 week scan showed that one twin, Oscar, had a heart condition. Sadly, at 27 weeks, Oscar passed away. She delivered both her boys at 33 weeks and tragically Oscar’s brother, Felix, also passed away in while in NICU….

Blu’s Story

Blu’s heart defects were diagnosed at his mum, Charlotte’s, 20-week scan. Here she tells their story: