Your Stories

Transposition of the Great Arteries: Ellie’s Story

Ellie’s heart condition, transposition of the great arteries (TGA) was diagnosed at her mum, Lauren’s, 20-week scan. After a long stay in hospital and lots of set-backs, she was discharged at 12 weeks old. This is their story:

Elsie’s Story

Jade’s daughter, Elsie, was born with a number of heart defects, including tetralogy of fallot (TOF). This is their story:

Aortic Stenosis: Freddie’s story

Freddie’s heart condition, aortic stenosis, was diagnosed by chance at his postnatal check. His mum, Gemma, says he has never showed any signs of having a heart defect. This is their story:

Dylan’s Story

Dylan’s heart conditions, coarctation of the aorta and aortic stenosis, were not detected until he was four and a half weeks old. Tragically, he passed away when he was ten weeks old. Here, Dylan’s mum Jaspreet tells their story in her own words: Our sweet boy Dylan was born on 9th February 2021 weighing 6.5lb…