Your Stories

Noel’s Story

When he was born, Jemma’s son, Noel, appeared to be perfectly healthy. Although a heart murmur was detected, there were no other concerns. Tragically, he passed away suddenly at eight weeks old. Here, Jemma tells their story:

Oscar’s Story

At her 12 week scan, Liz was surprised to find out she was expecting twins. Her 20 week scan showed that one twin, Oscar, had a heart condition. Sadly, at 27 weeks, Oscar passed away. She delivered both her boys at 33 weeks and tragically Oscar’s brother, Felix, also passed away in while in NICU….

Blu’s Story

Blu’s heart defects were diagnosed at his mum, Charlotte’s, 20-week scan. Here she tells their story:

Vascular Ring: Amelia’s Story

Amelia was diagnosed with a right aortic arch before she was born. Some branching patterns of the aortic arch and the vessels arising from it can form a complete vascular ring around the trachea and the oesophagus. A vascular ring can cause clinical symptoms in the neonatal period such as respiratory and feeding problems, due…

Ivy’s Story

Ivy was diagnosed with numerous heart defects during mum, Robyn’s pregnancy and tragically, she was born sleeping. This is their story:

Transposition of the Great Arteries: Ellie’s Story

Ellie’s heart condition, transposition of the great arteries (TGA) was diagnosed at her mum, Lauren’s, 20-week scan. After a long stay in hospital and lots of set-backs, she was discharged at 12 weeks old. This is their story: