Your Stories

Coarctation of the Aorta: Lily’s Story

When Lily arrived, she seemed perfectly healthy. The first time mum, Alison, knew her baby was seriously ill was when Lily had a pulse oximetry test at one day old. Thanks to the test, Lily’s condition – Coarctation of the Aorta – was detected before she was sent home from hospital. Here Alison tells their…

Facing My First Mother’s Day As A Bereaved Mum

Louise George lost her daughter, Jessica, to CHD in April 2018. Born in 2011 with Hypoplastic Left Heart Syndrome, heart warrior Jessica fought bravely for six and a half years. Here, Louise writes a beautiful and heart breaking post about facing her first Mother’s Day as a bereaved mum:

Hypoplastic Left Heart Syndrome – Danyl’s Story

At her 20 week scan, Danielle discovered one of her twins had Hypoplastic Left Heart Syndrome and various other defects. Despite being told that Danyl wasn’t expected to live for very long, they had a precious year with him before he passed away. This is their story:

Coarctation of the Aorta – Freddie’s Story

When Freddie was born, everything seemed fine. However, a few days later his mum, Naomi, became concerned something wasn’t quite right and sought medical help. By the time his heart defects were diagnosed, Freddie had gone into heart failure. Here Naomi tells their story: