Your Stories

Tetralogy of Fallot: Ethan’s Story (Part Three)

Sarah discovered her baby, Ethan, had a heart condition called Tetralogy of Fallot (TOF) at her 20 week scan. Sarah talked about her pregnancy and Ethan’s birth in parts one and two of Ethan’s story. Here, Sarah shares their experiences of Ethan’s open heart surgery.

Tetralogy of Fallot: Ethan’s Story (Part Two)

In part one of Ethan’s story, Sarah told us about discovering her baby had a heart condition called Tetralogy of Fallot (TOF) at her 20 week scan. You can read part one here. In part two, Sarah shares her experiences of giving birth and NICU:

Tetralogy of Fallot: Ethan’s Story (Part One)

At her 20 week scan, Sarah received the devastating news that her baby had Tetralogy of Fallot (TOF). After many scans and tests, a plan was put in place for Ethan’s delivery. In this emotional first instalment of their story, Sarah remembers how she felt when she received the diagnosis and waited for the results…

Joel’s Pulse Oximetry Test (Vlog)

Nicky’s eldest son, Tom, was born with a congenital heart defect, which was detected by a pulse oximetry test soon after his birth. Here she talks about the importance of the test and shows us her third child, Joel, having his pulse oximetry test:

Your baby needs open heart surgery

These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words that made my own heart break. The words that saw me lifting my face to the sky and begging, desperately pleading, for our little girl to be ok. Fear, guilt,…