Your Stories

Blu’s Story

Blu’s heart defects were diagnosed at his mum, Charlotte’s, 20-week scan. Here she tells their story:

Vascular Ring: Amelia’s Story

Amelia was diagnosed with a right aortic arch before she was born. Some branching patterns of the aortic arch and the vessels arising from it can form a complete vascular ring around the trachea and the oesophagus. A vascular ring can cause clinical symptoms in the neonatal period such as respiratory and feeding problems, due…

Ivy’s Story

Ivy was diagnosed with numerous heart defects during mum, Robyn’s pregnancy and tragically, she was born sleeping. This is their story:

Transposition of the Great Arteries: Ellie’s Story

Ellie’s heart condition, transposition of the great arteries (TGA) was diagnosed at her mum, Lauren’s, 20-week scan. After a long stay in hospital and lots of set-backs, she was discharged at 12 weeks old. This is their story:

Elsie’s Story

Jade’s daughter, Elsie, was born with a number of heart defects, including tetralogy of fallot (TOF). This is their story:

Aortic Stenosis: Freddie’s story

Freddie’s heart condition, aortic stenosis, was diagnosed by chance at his postnatal check. His mum, Gemma, says he has never showed any signs of having a heart defect. This is their story: