Your Stories

Tetralogy of Fallot: Ethan’s Story (Part One)

At her 20 week scan, Sarah received the devastating news that her baby had Tetralogy of Fallot (TOF). After many scans and tests, a plan was put in place for Ethan’s delivery. In this emotional first instalment of their story, Sarah remembers how she felt when she received the diagnosis and waited for the results…

Joel’s Pulse Oximetry Test (Vlog)

Nicky’s eldest son, Tom, was born with a congenital heart defect, which was detected by a pulse oximetry test soon after his birth. Here she talks about the importance of the test and shows us her third child, Joel, having his pulse oximetry test:

Your baby needs open heart surgery

These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words that made my own heart break. The words that saw me lifting my face to the sky and begging, desperately pleading, for our little girl to be ok. Fear, guilt,…

The two hardest moments of my son’s heart surgery

In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open heart surgery. Joel’s heart troubles began as a premature baby in neonatal care, when he suffered from supraventricular tachycardia and abnormal heart rhythms. Cardiac surgery at the age of four,…

Transposition of the Great Arteries: Arthur’s Story

Arthur’s heart condition, Transposition of the Great Arteries, was diagnosed at mum, Chelsee’s, 20 week scan. After a fairly stable first six weeks, Arthur contracted pneumonia. Here Chelsee takes us through their traumatic journey: