Your Stories

The two hardest moments of my son’s heart surgery

In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open heart surgery. Joel’s heart troubles began as a premature baby in neonatal care, when he suffered from supraventricular tachycardia and abnormal heart rhythms. Cardiac surgery at the age of four,…

Transposition of the Great Arteries: Arthur’s Story

Arthur’s heart condition, Transposition of the Great Arteries, was diagnosed at mum, Chelsee’s, 20 week scan. After a fairly stable first six weeks, Arthur contracted pneumonia. Here Chelsee takes us through their traumatic journey:

Tom’s Cardiology Review (Vlog)

Tom was born with Transposition of the Great Arteries, a heart condition that was detected by a pulse oximetry machine just before he left hospital. Here his mum, Nicky, talks about the importance of pulse oximetry and the family share Tom’s recent cardiology review:

Pulmonary Valve Stenosis: Harrison’s Story

When Harrison was born, doctor’s detected a slight heart murmur, however it wasn’t until he was 5 days old that his heart condition, Pulmonary Valve Stenosis, was diagnosed. His mum, Amy, tells their story: 

Why pulse oximetry testing is important to me – Natasha’s story

Below, Natasha, mum to baby Tommy who tragically passed away with an undetected CHD, tells us her views on the test that could save your baby’s life. If you’re a parent or carer with experience of CHD, we want to know what you think. Is pulse oximetry testing important to you? If so, why?