Your Stories

Zaki’s Story

Baby Zaki was diagnosed with multiple heart defects at his mum’s 20 week scan. Sadly, due to the number and complexity of his defects, he passed away at ten days old. Here, his dad Mourad bravely shares their story:

My baby’s heart defects: Amelie’s Story

Amelie’s heart defects, transposition of the great arteries, coarctation of the aorta and a ventricular septal defect, were diagnosed at mum Eleanor’s 20 week scan. This is their story:

Patent Ductus Arteriosus: Esme’s Story


Jade’s instinct told her that something wasn’t right with baby Esme’s health. After many trips to the GP, Esme was finally diagnosed with patent ductus arteriosus (PDA). This is their story:

Tricuspid Atresia: Finley’s Story

Louise and Daniel’s son, Finley, was born with tricuspid atresia, a VSD (hole in the heart) and pulmonary stenosis . Here Louise shares their story: