Your Stories

AVSD & PDA: Grace’s Story

Though Grace was a happy, seemingly well baby, her mum Georgina grew increasingly worried when she didn’t put on weight, despite having a very good appetite. She was finally diagnosed with Patent ductus arteriosus (PDA) and an atrioventricular septal defect (AVSD). This is their story: ​​On January 20th 2019, we left hospital with our daughter,…

VSD & ASD: Mercie’s Story

Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:

Acer’s Story: Part Three

Acer was born with Congenitally Corrected Transposition of the Great Arteries (read the first part of his story here). In this third update, Katie shares the next part of their journey.

Double Outlet Right Ventricle: Zach’s Story

My surprise youngest, Zach, was diagnosed at our 20 week scan and we were immediately referred to UCL for further scans. We were met by the foetal medical team and GOSH a week later and Zach was diagnosed with Transposition of the Great Arteries (TGA) and Double Outlet Right Ventricle (DORV). We were put in…

Transposition of the Great Arteries: Elsie’s story

Elsie’s heart defect, Transposition of the Great Arteries, wasn’t detected until she was critically ill. A month after her birth, Elsie’s mum, Becky, was admitted to hospital for post birth complications. Had this not occurred, Elsie may not be here today. Here, her dad Damian tells their emotional story: