Hypoplastic Left Heart Syndrome: Huxley’s Story
Huxley’s condition, Hypoplastic Left Heart Syndrome (HLHS), was diagnosed at his 20 week-scan. His mum, Shannon, tells us their story so far:
Huxley’s condition, Hypoplastic Left Heart Syndrome (HLHS), was diagnosed at his 20 week-scan. His mum, Shannon, tells us their story so far:
Though Grace was a happy, seemingly well baby, her mum Georgina grew increasingly worried when she didn’t put on weight, despite having a very good appetite. She was finally diagnosed with Patent ductus arteriosus (PDA) and an atrioventricular septal defect (AVSD). This is their story: On January 20th 2019, we left hospital with our daughter,…
Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:
Acer was born with Congenitally Corrected Transposition of the Great Arteries (read the first part of his story here). In this third update, Katie shares the next part of their journey.
My surprise youngest, Zach, was diagnosed at our 20 week scan and we were immediately referred to UCL for further scans. We were met by the foetal medical team and GOSH a week later and Zach was diagnosed with Transposition of the Great Arteries (TGA) and Double Outlet Right Ventricle (DORV). We were put in…
Elsie’s heart defect, Transposition of the Great Arteries, wasn’t detected until she was critically ill. A month after her birth, Elsie’s mum, Becky, was admitted to hospital for post birth complications. Had this not occurred, Elsie may not be here today. Here, her dad Damian tells their emotional story: