Your Stories

Dominic’s Story

Dominic was born with half a working heart. After an incredibly brave fight, he tragically passed away when he was one week old. His devastated parents share his story:

Ella’s Story

Ella tragically passed away when she was three and a half months old. Her heart-broken parents, Leah and Joe, share their brave daughter’s story:

Pulmonary Atresia: Ivy’s Story

Ivy’s heart defect, pulmonary atresia, wasn’t detected until she was critically ill. Her mum, Bernice, shares their story: Our little girl, Ivy, was born in June 2021. She was just perfect. However, we knew early on that something wasn’t right, but were told many times she was absolutely fine. When Ivy was just four days…

Tetralogy of Fallot: Rafe’s Story

Tetralogy of Fallot: Rafe

Rafe’s heart condition, Tetralogy of Fallot (TOF), was diagnosed at Catherine’s 20-week scan. She has recorded their story in three parts, which you can watch below. You can find out more about Tetralogy of Fallot here. Part One: Diagnosis Part Two: Birth and Before Surgery Part Three: Surgery and Beyond

Transposition of the Great Arteries and VSD: Oscar’s Story

Rosanna and Adam’s son, Oscar, was diagnosed with transposition of the great arteries (TGA) before he was born. The early detection meant he received life-saving treatment as soon as he arrived. This is his story, told by Rosanna: During our 20-week scan, we were excited to find out the gender of our baby. All was…