Your Stories

Truncus Arteriosus: James’ Story

Laura received the devastating news that her baby had a serious heart condition, Truncus Arteriosus, at her 20 week scan. Here she shares James’ story:

AVSD & PDA: Grace’s Story

Though Grace was a happy, seemingly well baby, her mum Georgina grew increasingly worried when she didn’t put on weight, despite having a very good appetite. She was finally diagnosed with Patent ductus arteriosus (PDA) and an atrioventricular septal defect (AVSD). This is their story: ​​On January 20th 2019, we left hospital with our daughter,…