Your Stories

Tetralogy of Fallot: Roxy’s Story


Rebecca found out that her daughter had a heart condition, Tetralogy of Fallot (TOF) at her 20 week scan. Roxy was born during the coronavirus pandemic. This is their story:

Double Aortic Arch: Iva’s Story


Iva was in and out of hospital with respiratory issues for the first 12 months of her life. Her heart defect, double aortic arch, was finally diagnosed after many tests. Her mum, Kelsey, shares their journey:

Zaki’s Story

Baby Zaki was diagnosed with multiple heart defects at his mum’s 20 week scan. Sadly, due to the number and complexity of his defects, he passed away at ten days old. Here, his dad Mourad bravely shares their story: