Your Stories

AVSD: Charlie’s Story

Charlie’s heart condition, atrioventricular septal defect (AVSD), wasn’t diagnosed until he was 19 months old. Here, his mum, Beccy, shares their emotional story:

Ebstein’s Anomaly: Esme’s Story

Esme’s heart condition, Ebstein’s Anomaly, wasn’t detected during Stacey’s pregnancy. Esme appeared to be perfectly healthy after birth, but a routine pulse oximetry test showed that her blood oxygen level was low. This resulted in her referral and speedy diagnosis:

TAPVC: Oscar’s Story

Soon after birth, a pulse oximetry test detected Oscar’s SATS were low, and this led to him being diagnosed with total anomalous pulmonary venous connection (TAPVC). His mum, Clare, tells his story:

Pulmonary Atresia: Leo’s Story

Soon after he was born, Leo had a pulse oximetry test, which showed his blood oxygen level was very low. The quick, painless and simple test started the chain of events that went on to save his life. His mum Emma tells his story: