Privacy policy

Tiny Tickers Privacy Policy Updated January 2022

At Tiny Tickers we’re committed to protecting and respecting your privacy.

This Policy explains when and why we collect personal information, how we use it, the conditions under which we may disclose it to others and how we keep it secure.

Who are we?

Tiny Tickers is the only national charity dedicated to the detection and diagnosis of Congenital Heart Disease (CHD) in babies – pre, neo and postnatally. As a charity that receives no government funding, we rely entirely on the kindness and generosity of our valued supporters. We are completely committed to protecting our supporters’ personal information, as well as being open and honest about how we collect, store and use the information we receive. Tiny Tickers is a member of the Small Charities Coalition and NCVO.

This policy explains how we collect and use your information.

When you provide us with your personal information you are agreeing to this policy and consenting to our collection and use of that information as set out in this policy.
We may be required to update this policy at any time without notice to you, so please check it regularly.

How do we collect information?
We may obtain personal information from you when you ask about our activities, register with us, train with us, send or receive an email, make a donation or otherwise provide us with personal information. All information collected is processed in accordance with our legal requirements and the General Data Protection Regulation (GDPR).

What information do we collect?
The information we collect depends upon your interaction with Tiny Tickers, whether it’s via our website, getting in touch, taking part in an event or training. This information could include (but is not exclusive to) your full name, date of birth, email address, child’s medical condition (if applicable), postal address and telephone number. At this date all our donations are processed by third party sites (including but not limited to Justgiving, Donr and CAF) so Tiny Tickers do not hold any banking details; but we will hold information on donation dates, values and if they were for a specific purpose.

We may also collect details of your visits to our website, including but not limited to traffic data, location data, weblogs and other communication data. For further information regarding this activity please read our cookie policy.  All the forms and transactions on this site comply with data protection requirements (GDPR, Data Protection Act 1998 (DPA)).

You may give us your personal information indirectly, through a donation on a fundraising site such as Global Giving, Justgiving or Charities Aid Foundation. These third parties will ask you whether you are happy to be contacted by us and we will not use your information to contact you without explicit permission given by you via these sites.

When we ask for your personal information, we will always ask for, and uphold, your contact preferences.

If you would like to opt out of communications directly, please contact us, either by phone on 0300 102 1508, by writing to the Chief Executive Jon Arnold, PO Box 369, Leeds, LS26 1FR or email

We do not sell your personal information to any other organisations. We may share relevant information with organisations that are employed directly to assist in raising funds, such as printers for mailing purposes or companies that manage fundraising events for Tiny Tickers.

Why do we collect your information?
We collect the information you provide to:

TINY TICKERS will never swap or sell your details. When dealing with your personal information we will always comply with the General Data Protection Regulation and any other applicable legislation.

We will only use your personal information for direct marketing purposes (i.e. such as an appeal letter to you) if we believe you would reasonable expect to receive this or we have notified you that you will receive it. You can change your marketing preferences at any time by writing to Chief Executive Jon Arnold, PO Box 369, Leeds, LS26 1FR or emailing

How do we protect personal information?
We take the security of your information very seriously and have put appropriate measures in place to minimise the risk to your information from loss, theft or misuse. These include:

Links to third party websites
If you access other websites via a link on our website please ensure you read their privacy policy as they are independent from TINY TICKERS and we have no control over how they manage your personal information that is collected from their website.

Social media sites (Facebook, Twitter, Instagram, YouTube, LinkedIn etc)
This policy covers how we will use your information from social media pages that you visit but you will also need to read how the providers of the social media websites will use your information. Please ensure you read their Privacy policy before sharing data and make use of their privacy settings and reporting mechanisms to control how your data is used.

Do we share your information?

We will not sell or rent your information to third parties.

We will not share your information with third parties for marketing purposes

There are some circumstances where we may need to share data. For instance:

Right of access
You have the right to ask for a copy of the information we hold about you, why we hold your data, how it is processed and to have any inaccuracies in your information corrected.

To request this information please by phone on 0300 102 1508 or send a request in writing to the Chief Executive Jon Arnold, PO Box 369, Leeds, LS26 1FR or email Please note Tiny Tickers have up to 30 days to respond to your request.

Right to be forgotten:

You have the right to have your data permanently erased. This will also apply to third parties and does not require a formal withdrawal of consent.

Contact details
If your personal details change, please help us to keep your information up-to-date by notifying us.

If at any time you’d like us to change the way we contact you, or if you would like to opt out of our communications altogether please contact a member of our team by:

We will only email or text you if we have your consent to do so, but if you receive anything you would rather not, please let us know. We include an unsubscribe option within every email or text message we send so you are always in control of what you receive.

There are also details of how to opt out of mailings in our annual mailing. If you receive a mailing you do not want, please let us know so we can update your communication preferences. This will help us to ensure we only ever send you materials that you would like to receive.

Your consent
By providing us with your personal information you consent to the collection and use of the information you have provided in accordance with the above purposes and this Privacy policy.

All photography on this site is reproduced with kind permission of the photographers concerned and the parents of the child in the photo.

All information published on this site is provided to the best of our knowledge. However, while Tiny Tickers are happy to provide information and advice to health professional, families of children and babies with CHD, supporters and members of the public; it must be appreciated that such guidance is based only on information supplied to Tiny Tickers and Tiny Tickers will not be liable for injury, loss or damage arising from such guidance supplied. You may print any newsletter or factsheet on this site for your own information, but you may not sell it, reproduce it on the internet, alter it, or reprint it in any publication without permission from Chief Executive, Jon Arnold, PO Box 369, Leeds, LS26 1FR or email

If you have a complaint about Tiny Tickers or any of our policies or procedures please visit the Contact Us page or write to Chief Executive, Jon Arnold, PO Box 369, Leeds, LS26 1FR

This policy was last updated on 13 January 2021.