We are here to support healthcare professionals working with babies, children and families affected by CHD.
Tiny Tickers offer a range of support materials to help families from the point of diagnosis, we hope you find them useful.
Thanks to the generosity of our supporters, friends and funders, all these resources are free for health professionals to download, print, share and use.
Support Information for Families
Family Support Booklets
Booklets for families who have received a diagnosis of CHD.
Family Experience Videos
It is often helpful for families to hear the stories of those who have gone through similar situations. A range of videos is available here to offer a family perspective.
Dental Care for Children with CHD
Advice for parents about the importance of looking after their child’s dental health and what they can do to achieve this.
Mental Health Information for Parents
Many parents we work with tell us that they have, at times, struggled with their mental health. We have put together some advice and information about looking after your mental health, coping with trauma and who can help.
UK Paediatric Heart Units
Links and contact information for UK heart units.
Information on Conditions
Information and downloadable PDFs on specific heart conditions can be found here.
How the Heart Develops
A description and animation for families showing how a baby’s heart develops.
Bronchiolitis
Babies with heart conditions are more at risk of developing bronchiolitis. Parents can learn the signs and symptoms, plus the preventative measures they can take here.
Colouring Pages
We have created a fun set of colouring pages for children and their siblings to get creative with.
Visiting Your Specialist Centre
A downloadable PDF with advice for parents visiting their tertiary centre for the first time after referral.
Resources for Professionals
Detection Rate Data
Data from the National Institute for Cardiovascular Outcomes Research (NICOR) relating to antenatal diagnosis of congenital heart defects.
FASP Leaflet
The NHS FASP, based in Public Health England, ensures that women are provided with high quality information in order to make an informed personal choice about their screening and pregnancy options. This information leaflet has been designed to give women and families information about their referral to the cardiology team and what to expect at their appointment.
Patient Journey
The patient journey begins from the very first moment a cardiac anomaly has been suspected on ultrasound. It is often a difficult and challenging journey and this information will highlight some of the challenges and complexities they will meet along the way.
Medical Abbreviations
A list of the most commonly used abbreviations for heart conditions.
Think HEART & Think 20
View and download our resources relating to our Think HEART and Think 20 awareness campaigns.
Training
Did you know, Tiny Tickers can also help your hospital’s maternity unit with sonographer training and pulse oximetry equipment for newborn testing?
You must be logged in to post a comment.