We hope you find the following resources useful and of interest. We’re adding new resources all the time and thanks to the generosity of our supporters, friends and funders, all these resources are free for health professionals to use.
We’ve been training in all five views of the fetal heart for many years, so all relevant resources include the three vessel and trachea view.
We have produced five short training videos – fetal anomaly training guides – aimed at helping sonographers detect a series of CHDs. These videos include experts talking about these conditions and tips to spot them during the 20 week screening; scan clips of the conditions; and animations detailing the difference between the normal heart and these conditions.
- Introduction: Early Detection of Fetal Heart Abnormalities
- How a fetal heart develops
- Transposition of the Great Arteries
- Tetralogy of Fallot
- Coarctation of the Aorta
- Hypoplastic Left Heart Syndrome
Scanning planes poster
Our poster showing the five scanning planes of the fetal heart is displayed on the walls of scanning rooms across the UK. Download the latest version here
Scanning the fetal heart
This card is an aide memoire for sonographers – describing the five views of the fetal heart to be taken during screening, detailing the normal heart and running through some of the more common congenital heart defects. Please note this card is currently being updated and will be available soon.
Our downloadable list of common structural congenital heart defects and possible abbreviations / alternative – click here for the PDF list.
New diagnosis booklet for parents
Our booklet is designed to be given to parents-to-be who have received the news that their baby may have / has a congenital heart defect. The booklet does not offer medical advice – it is written from the perspective of other parents and offers experiences, tips and suggestions to help support parents-to-be at an incredibly difficult time. Order now.
Hospital guide booklet for parents
This booklet is designed to be given to parents or parents-to-be who are likely to be faced with their baby spending time in hospital and undergoing either open heart surgery or other interventions. The booklet does not offer medical advice – it is written from the perspective of other parents and offers experience, tips and suggestions to help support parents through the traumatic process. It explains what is likely to happen during their stay in hospital, and familiarises parents with medical professionals and their roles. Order now.
Detection rate data
The National Institute for Cardiovascular Outcomes Research (NICOR) collates data relating to antenatal diagnosis of congenital heart defects. Currently, their data set is limited to patients treated by surgery or intervention in the first year of life – meaning it is not an overall antenatal detection rate as it doesn’t include terminations; deaths during pregnancy or peri-natal deaths; conditions that don’t require treatment in the first 12 months; cases detected post-12 months; or instances where intervention is decided against due to the complexity of the patient’s condition(s).
However, this is the best data available at this time, and provides a strong indication of antenatal rates in our nations and regions. The full data is available at http://nicor4.nicor.org.uk/CHD/an_paeds.nsf/vwContent/Antenatal%20Diagnosis?Opendocument.
National detection rates
|GB & Ireland (overall)||36.1%||40.3%||42.2%||45.7%|
Regional detection rates
|Region||Five year average rate (2009-14)||Most recent year (2013-14)|
|Cheshire, Warrington and Wirral||34.0%||52.3%|
|Durham, Darlington and Tees||33.4%||37.5%|
|Cumbria, Northumberland, Tyne and Wear||43.5%||64.3%|
|North Yorkshire and Humber||36.6%||56.1%|
|South Yorkshire and Bassetlaw||29.9%||37.0%|
|Arden, Herefordshire and Worcestershire||35.0%||34.7%|
|Birmingham and The Black Country||36.2%||49.0%|
|Derbyshire and Nottinghamshire||40.0%||40.0%|
|Hertfordshire and The South Midlands||36.2%||41.9%|
|Leicestershire and Lincolnshire||35.0%||39.7%|
|Shropshire and Staffordshire||40.4%||36.5%|
|Bath, Gloucestershire, Swindon and Wiltshire||40.8%||33.3%|
|Bristol, North Somerset, Somerset and South Gloucestershire||38.4%||44.9%|
|Devon, Cornwall and Isles Of Scilly||39.0%||50.0%|
|Kent and Medway||46.7%||54.4%|
|Surrey and Sussex||41.0%||48.4%|
Tiny Tickers is not responsible for the content of these external websites and reports, but we recommend them to sonographers and other health professionals involved in screening the fetal heart and/or providing care to patients with a diagnosis of congenital heart defects.
- UK National Screening Committee – www.gov.uk/government/groups/uk-national-screening-committee-uk-nsc
- NHS Fetal Anomaly Screening Programme (FASP) – www.gov.uk/topic/population-screening-programmes/fetal-anomaly
- Antenatal Screening Wales – www.antenatalscreening.wales.nhs.uk/
- NHS Scotland, Pregnancy Screening Programmes – www.nsd.scot.nhs.uk/services/screening/pregscreening/index.html
- Public Health Agency, Northern Ireland, Antenatal Screening – www.publichealth.hscni.net/directorate-public-health/service-development-and-screening/antenatal-screening
- NHS Screening Programmes Professional Development website – http://cpd.screening.nhs.uk/
- National Institute for Cardiovascular Outcomes Research, section on antenatal detection rates in the UK – https://nicor5.nicor.org.uk/CHD/an_paeds.nsf/vwContent/Antenatal%20Diagnosis?Opendocument
- Understanding Chilldren’s Heart Surgery Outcomes – http://childrensheartsurgery.info/
- The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) – www.gov.uk/guidance/the-national-congenital-anomaly-and-rare-disease-registration-service-ncardrs
- NHS England clinical reference group for congenital heart services – https://www.england.nhs.uk/commissioning/spec-services/npc-crg/
- NHS England new congenital heart disease review, including papers on the new standards for referral pathways following antenatal detection – www.england.nhs.uk/ourwork/qual-clin-lead/chd/
- European Surveillance of Congenital Anomalies (EUROCAT) – http://www.eurocat-network.eu
- ARC (Antenatal Results and Choices charity) – www.arc-uk.org
- A fascinating supercomputer simulation of a working human heart from the University of Tokyo – https://youtu.be/2LPboySOSvo
- An excellent paper providing detailed background about CHD and issues regarding detection – Screening for Congenital Heart Defects, (External review against programme appraisal criteria for the UK NSC), by Dr Rachel L Knowles and Ms Rachael M Hunter, University College London – download here.
New Resources Under Development
We’re continually developing new resources, thanks to the generosity of our supporters and funders, so please return to this page. If you have any questions or feedback about any of our training resources, please contact us via firstname.lastname@example.org.