Wherever you are on your journey, we’re here to help. Discover all the ways we can support you below.
Support packs
Order a free family support pack, which contains our booklet, ‘Some things we’d like to tell you about congenital heart disease’, a pair of bonding squares, a hug button and other information.
Family experience videos
Watch families affected by congenital heart disease (CHD) discuss their experiences. The video series covers topics such as diagnosis, surgery, being in hospital and telling friends and family.
Looking after your mental health
As the parent or carer of a poorly child, it’s important to look after your mental health. Read tips and advice from other heart parents.
Virtual peer support sessions and groups
Our virtual peer support groups are an opportunity to speak to other heart parents in a small Zoom group setting, led by a qualified facilitator.
Family support webinars
Our free family support webinars for heart families aim to provide help and support when you need it most.
Support for siblings
Advice and guidance to help parents support the siblings of babies born with congenital heart defects.
Support for heart grandparents
Advice, information and support for heart grandparents.
Financial support
Find information about benefits and grants you may be entitled to, and how you can access financial support.
Bronchiolitis
Heart babies are more at risk of developing severe bronchiolitis. Find out more about the symptoms and how to reduce the risk.
Dental care for children with CHD
Good dental hygiene is especially important for children with congenital heart disease (CHD).
Packing your hospital bag
A list of tips and recommendations from our community of heart parents.
Starting nursery or school
Information and advice for when it’s time for your child to start nursery or school.
Cuppa & Chat
Grab a cuppa and watch our informal chat sessions with heart parents.
