Family Experience Videos

Finding out your baby has a heart defect is undoubtedly a difficult time, but you are not alone. In this series of short videos, families share their own varied experiences of CHD, from receiving a diagnosis to spending time in hospital and living with a heart condition.

Finding Out Your Baby Has A Heart Defect During Pregnancy

Finding Out Your Baby Has A Heart Defect After They Are Born

Living With a Child With CHD

Telling Friends and Family

Have More Children After Having a Baby With CHD

The Children and Family Perspective

Preparing for Surgery

Being in Hospital (Part One)

Being in Hospital (Part Two)

We would like to thank all of the families featured in these films for their stories, memories and photographs featured in these films. We know that this was an emotional experience and are very grateful for their efforts to help others who find themselves in a similar position.

You can also order one of our family support packs, which contains information on congenital heart defects and what to expect from your hospital stay. Order yours here.

We’d love to know if you have found these videos useful, if you have any comments, please drop us a line by emailing