Cardiac Liaison Team Information
Find the contact details of your local cardiac liaison team.
Order Tiny Tickers materials
We have a wide range of free materials – from family support packs to information about your 20-week scan and the key signs a baby may have an undiagnosed heart defect.
Other useful links
Here are some links to other organisations with useful information. Tiny Tickers is not responsible for any of the information on these sites.
NICOR
The National Institute for Cardiovascular Outcomes Research (NICOR) monitors outcomes from each hospital doing congenital heart surgery, and records prenatal detection rates. Their website shows these results.
Understanding Children’s Heart Surgery Outcomes
This site is to help people make sense of published survival data about children’s heart surgery in the UK and Ireland.
ARC
A national charity helping parents and healthcare professionals through antenatal screening and its consequences.
Jude Brady Foundation
A charity that raises awareness of stillbirth and neonatal death, and funds for child-related causes in the UK.
Healthtalkonline
A website where people share their experiences of health issues and care – includes sections on antenatal screening, pregnancy and childhood conditions.
Counselling Directory
If you need additional support, the Counselling Directory is a confidential website that has information and contact information of over 10,000 qualified and accredited counsellors.
Heartline Families
Heartline Families is a charity that provides support to children with heart conditions and their families.
Over The Wall Camp
Over the Wall Charity provides free residential camps for children with health challenges and their siblings and families. Medical staff are on hand at the camps, which are very inclusive so all activities are accessible to all the children. The charity offers camps for children, family camps and also online activity days.
Living Well with CHD: The Boston Children’s Hospital Guide to Cardiac Neurodevelopment
This website aims to help adult CHD patients, parents and professionals navigate the developmental journey of CHD, and optimise the quality of life for those living with CHD.
Neonatal Care Leave & Pay
A comprehensive guide to neonatal leave and pay from the Advisory, Conciliation and Arbitration Service (ACAS).
Counselling Carers
Counselling Carers offers counselling for those who are caring for others.
Talking to Your Child About Their Heart Condition
This video, kindly provided by the North West CHD Network, features a clinical psychologist sharing simple and reassuring ways to talk to your child about their heart condition.
Resources for children
Get Well Soon – Hospital Series 1 & 2
Available on BBC iPlayer, the Cbeebies Get Well Soon series, presented by Dr. Ranj, shows children what to expect from different medical procedures, including echocardiograms and ECGs. It also covers NG tubes, cannulas and operations.
Mr Tumble Helps the Toys!
Join Mr Tumble in the toy hospital as Doctor Tumble helps toys with mysterious spots! With cream, plasters and plenty of fun, this episode also includes sign language to make learning accessible and enjoyable.
Hayden’s Heart Condition Story
In this episode of Operation Ouch, we meet Hayden as he prepares for life-changing heart surgery. It’s an incredible look at the amazing work surgeons do to mend tiny hearts.
Please note: the episode contains real footage of a beating heart during surgery.
