Other useful links
Here are some links to other organisations with useful information. Tiny Tickers is not responsible for any of the information on these sites.
The congenital heart defects section on the NHS Choices website, with details about different heart conditions.
The National Institute for Cardiovascular Outcomes Research (NICOR) monitors outcomes from each hospital doing congenital heart surgery, and records prenatal detection rates. Their website shows these results.
This site is to help people make sense of published survival data about children’s heart surgery in the UK and Ireland.
A national charity helping parents and healthcare professionals through antenatal screening and its consequences.
A charity that raises awareness of stillbirth and neonatal death, and funds for child-related causes in the UK.
A website where people share their experiences of health issues and care – includes sections on antenatal screening, pregnancy and childhood conditions.
If you need additional support, the Counselling Directory is a confidential website that has information and contact information of over 10,000 qualified and accredited counselors.
Families facing financial hardship while caring for a child with a serious illness can apply to Marvellous Family Grants for help. The grants are provided to help families cope at such a difficult time. Funding can be sought for specialist equipment, creative therapies, hospital travel expenses and other costs.
Heartline Families is a charity that provides support to children with heart conditions and their families.
Resources for children
Available on BBC iPlayer, the Cbeebies Get Well Soon series, presented by Dr. Ranj, shows children what to expect from different medical procedures, including echocardiograms and ECGs. It also covers NG tubes, cannulas and operations.