Adult CHD Stories

Patent Ductus Arteriosus – Will’s Story

Will was born in 1986 with Patent Ductus Arteriosus, Transposition of the Great Vessels and a large hole in his heart. Here his proud mum, Karen, shares their emotional and inspiring story:

What A Great North Runner – Part 2 !!

Our Inspirational Heart Hero Joe Barry starts his training for the Great North Run Joe Barry was born with undetected CHD – 20 years and four open heart surgeries later, he has chosen to take part in the Great North Run for Tiny Tickers to help us to find more babies with heart problems and give…

What a Great North Runner !!

At 20 years old, the inspirational Joseph Barry has joined Team Tiny Tickers to help raise vital lifesaving funds and awareness that there is hope after a diagnosis of CHD.

Atrial Septal Defect – Jade’s Story

Jade was born prematurely and was eventually diagnosed with a number of heart defects, including coarctation of aorta and atrial septal defect. Operated on when she weighed just 2lbs 2oz, she is Britain’s smallest ever open heart surgery survivor. This is her story, first shared in 2016, and told by her mum Mags:

Heart Heroes: Sarah Thompson

Sarah was born in 1987 with a number of complex congenital heart defects. Her parents were warned she may not to survive and told to take each day as it came. In 1992 she had her first Fontan Procedure. Today, aged 30, she lives a full and normal life. This is her incredible story:

The adult perspective – Gemma’s Story

Gemma Wilford was 33 when she was diagnosed with a congenital heart defect. A defect she had had since birth. By this point she was already in heart failure. Here is Gemma’s story.