Lucca was diagnosed with a thickened tricuspid valve at mum, Laura’s, 20 week scan. On the day he was born, doctors discovered he had an ASD, bicuspid aortic valve and dysplasia tricuspid valve. Then, at just 12 days old, Lucca was diagnosed with coarctation of the aorta when he became critically ill very quickly. This…
Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:
Maisie’s heart defects, VSD and ASD, were diagnosed when she was two weeks old, during the height of the COVID-19 lockdown. Here, her mum Jessica, tells their story in order to give other newly diagnosed parents hope for their own journeys.
Zareenah’s heart condition, pulmonary stenosis, was diagnosed at mum, Homaira’s 20 week scan. After she was born, doctors discovered Zareenah also had a VSD and an ASD. This is her story:
These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words that made my own heart break. The words that saw me lifting my face to the sky and begging, desperately pleading, for our little girl to be ok. Fear, guilt,…
In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open heart surgery. Joel’s heart troubles began as a premature baby in neonatal care, when he suffered from supraventricular tachycardia and abnormal heart rhythms. Cardiac surgery at the age of four,…
