ASD

VSD & ASD: Mercie’s Story

Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:

Pulmonary Stenosis: Zareenah’s Story

Zareenah’s heart condition, pulmonary stenosis, was diagnosed at mum, Homaira’s 20 week scan. After she was born, doctors discovered Zareenah also had a VSD and an ASD. This is her story:

Your baby needs open heart surgery

These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words that made my own heart break. The words that saw me lifting my face to the sky and begging, desperately pleading, for our little girl to be ok. Fear, guilt,…

The two hardest moments of my son’s heart surgery

In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open heart surgery. Joel’s heart troubles began as a premature baby in neonatal care, when he suffered from supraventricular tachycardia and abnormal heart rhythms. Cardiac surgery at the age of four,…

Atrial Septal Defect – Jade’s Story

Jade was born prematurely and was eventually diagnosed with a number of heart defects, including coarctation of aorta and atrial septal defect. Operated on when she weighed just 2lbs 2oz, she is Britain’s smallest ever open heart surgery survivor. This is her story, first shared in 2016, and told by her mum Mags: