Jade’s daughter, Elsie, was born with a number of heart defects, including tetralogy of fallot (TOF). This is their story:
ASD
Lucca’s Story
Lucca was diagnosed with a thickened tricuspid valve at mum, Laura’s, 20 week scan. On the day he was born, doctors discovered he had an …read more
VSD & ASD: Mercie’s Story
Mercie was born with a ventricular septal defect (VSD) and an atrial septal defect (ASD). Her mum, Natasha, tells us about their journey:
Ventricular Septal Defect and Atrial Septal Defect: Maisie’s Story
Maisie’s heart defects, VSD and ASD, were diagnosed when she was two weeks old, during the height of the COVID-19 lockdown. Here, her mum Jessica, …read more
Pulmonary Stenosis: Zareenah’s Story
Zareenah’s heart condition, pulmonary stenosis, was diagnosed at her mum, Homaira’s 20 week scan. After she was born, doctors discovered Zareenah also had a VSD …read more
Your baby needs open heart surgery
These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words …read more
