Double Outlet Right Ventricle

Double Outlet Right Ventricle: Zach’s Story

My surprise youngest, Zach, was diagnosed at our 20 week scan and we were immediately referred to UCL for further scans. We were met by the foetal medical team and GOSH a week later and Zach was diagnosed with Transposition of the Great Arteries (TGA) and Double Outlet Right Ventricle (DORV). We were put in…

Rory’s story

Identified at his 20-week scan, Rory was diagnosed with Transposition of the Great Arteries, Ventricular Septal Defect and Double Outlet of the Right Ventricle he also had a Pulmonary Stenosis and Dextrocardia.  “We discovered our second son Rory had heart problems at the 20-week scan. To say it was a shock is an understatement! You never…

Double Outlet Right Ventricle – Lily’s Story

Katie found out her daughter, Lily, had a range of heart conditions, including Double Outlet Right Ventricle, before she was born. Here she tells their story and explains why early detection was so crucial for Lily.