hypoplastic left heart syndrome

Shone Syndrome – Joey’s Story

Joey has a rare heart condition called Shone Syndrome. Being diagnosed with Congenital Heart Disease at mum, Chelsea’s 20-week scan meant he had a care plan put in place straight away and his family were fully prepared for his arrival. Here Chelsea tells their story:

Hypoplastic Left Heart Syndrome – Ivy’s Story

Ivy was diagnosed with Congenital Heart Disease at her mum, Clare’s, 20 week scan. After birth, doctors confirmed she had Hypoplastic Left Heart Syndrome. Ivy has undergone two open heart surgeries. This is her story as told by Clare: