hypoplastic left heart syndrome

Hypoplastic Left Heart Syndrome: Ellis’ Story

When Ellis was born, no-one knew only half of his heart was working. When mum, Chelcie, became concerned, Ellis was rushed to the doctor and diagnosed with hypoplastic left heart syndrome (HLHS). This is their story:

Hypoplastic Left Heart Syndrome: Edison’s Story

Edison’s heart condition, Hypoplastic Left Heart Syndrome, was diagnosed before he was born. He arrived during the coronavirus pandemic and is now awaiting his second open heart surgery. His mum, Navarna, tells their story so far:

Shone Syndrome – Joey’s Story

Joey has a rare heart condition called Shone Syndrome. Being diagnosed with Congenital Heart Disease at mum, Chelsea’s 20-week scan meant he had a care plan put in place straight away and his family were fully prepared for his arrival. Here Chelsea tells their story:

Hypoplastic Left Heart Syndrome – Ivy’s Story

Ivy was diagnosed with Congenital Heart Disease at her mum, Clare’s, 20 week scan. After birth, doctors confirmed she had Hypoplastic Left Heart Syndrome. Ivy has undergone two open heart surgeries. This is her story as told by Clare: