Loss

Facing My First Mother’s Day As A Bereaved Mum

Louise George lost her daughter, Jessica, to CHD in April 2018. Born in 2011 with Hypoplastic Left Heart Syndrome, heart warrior Jessica fought bravely for six and a half years. Here, Louise writes a beautiful and heart breaking post about facing her first Mother’s Day as a bereaved mum:

Hypoplastic Left Heart Syndrome – Danyl’s Story

At her 20 week scan, Danielle discovered one of her twins had Hypoplastic Left Heart Syndrome and various other defects. Despite being told that Danyl wasn’t expected to live for very long, they had a precious year with him before he passed away. This is their story:

Double Outlet Right Ventricle – Oliver’s Story

Megan’s son, Oliver, was born with Double Outlet Right Ventricle, Pulmonary Artresia and a large VSD. He fought hard all his life, but tragically passed away soon after his first birthday. This is their story:

A message of thanks from Tommy’s Mum

Our Test for Tommy campaign is dedicated to the memory of baby Tommy and aims to ensure that every baby is given the test that could help save their life. Natasha, Tommy’s Mum, wanted to say thank you for the overwhelming support shown to both Tiny Tickers, and Tommy’s family, as a result of this…

Ebstein’s Anomaly – Grace’s Story

Grace was diagnosed with a serious form of Ebstein’s Anomaly at her mum, Aimee’s, 20 week scan. Sadly, she passed away soon after birth, but her parents are forever grateful to the sonographer who spotted her heart defect. Without the early detection, Grace wouldn’t have made it to birth. This is their story:

Endocardial Fibroelastosis – Eadie’s Story

When Eadie was born, she seemed perfectly happy and healthy. However, three months later her parents were left devastated when she passed away suddenly. Here her mum, Carina, talks about their traumatic journey and Eadie’s eventual diagnosis of Endocardial Fibroelastosis: