Loss

Dylan’s Story

Dylan’s heart conditions, coarctation of the aorta and aortic stenosis, were not detected until he was four and a half weeks old. Tragically, he passed away when he was ten weeks old. Here, Dylan’s mum Jaspreet tells their story in her own words: Our sweet boy Dylan was born on 9th February 2021 weighing 6.5lb…

Millie’s Story

Millie’s heart condition was detected at her 20-week scan and she had surgery soon after birth. But post-surgery infections were too much for her body to handle and, tragically, she passed away when she was one month old. Here, her mum Sam tells their story:

Zaki’s Story

Baby Zaki was diagnosed with multiple heart defects at his mum’s 20 week scan. Sadly, due to the number and complexity of his defects, he passed away at ten days old. Here, his dad Mourad bravely shares their story:

Transposition of the Great Arteries: Levi’s Story

Levi’s congenital heart defects, Transposition of the Great Arteries and a VSD, were detected at his mum, Natasha’s 20 week scan. After putting up a very brave fight, Levi tragically passed away, leaving his parents and two brothers devastated. This is his story:

Facing My First Mother’s Day As A Bereaved Mum

Louise George lost her daughter, Jessica, to CHD in April 2018. Born in 2011 with Hypoplastic Left Heart Syndrome, heart warrior Jessica fought bravely for six and a half years. Here, Louise writes a beautiful and heart breaking post about facing her first Mother’s Day as a bereaved mum: 

Hypoplastic Left Heart Syndrome – Danyl’s Story

At her 20 week scan, Danielle discovered one of her twins had Hypoplastic Left Heart Syndrome and various other defects. Despite being told that Danyl wasn’t expected to live for very long, they had a precious year with him before he passed away. This is their story: