Endocardial Fibroelastosis – Eadie’s Story

When Eadie was born, she seemed perfectly happy and healthy. However, three months later her parents were left devastated when she passed away suddenly. Here her mum, Carina, talks about their traumatic journey and Eadie’s eventual diagnosis of Endocardial Fibroelastosis:

In Memory of Rory – Ride100, by Richard Hall

Nothing prepares you for the moment when you find out that your baby has a heart condition, irrespective of severity.  Those of you reading this might know, or know someone, who has had to learn that difficult news.  Your world falls apart and you desperately search for hope. Together my wife and I made the…

Minnie’s story

Liam and I got married in May 2014 and immediately discovered that we were pregnant with our second child.  We were thrilled and, aside from a small bleed in the first trimester, the pregnancy seemed to be going according to plan and our scans didn’t indicate that anything was wrong.

Marshall’s Story

Simon and Hayley’s son Marshall was born with a CHD which went undetected during Hayley’s pregnancy, and tragically their son passed away soon after birth.

Jessica’s story

Louise found out her baby had a serious congenital heart defect called hypoplastic left heart syndrome at her 20 week scan. “The 20 week scan is an exciting moment for many parents – getting to see their baby on screen and perhaps finding out the gender,” Louise said. “For us, the 20 week scan ended up being one of…