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You are here: Home / Archives for Parents Blog

Parents Blog

The Good News Bulletin

27th October 2020 in NewsParents Blog

Even though our small charity is facing our toughest months in our 20 years we are still here… delivering support and services amidst the harshest …read more

Elodie ASD

Your baby needs open heart surgery

26th August 2019 in Blog, Your StoriesASD Parents Blog

These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words …read more

Joel & Olivia

The two hardest moments of my son’s heart surgery

26th August 2019 in Blog, Your StoriesASD Parents Blog Supraventricular Tachycardia

In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open …read more

Why pulse oximetry testing is important to me – Natasha’s story

1st August 2019 in Blog, Your StoriesParents Blog

Below, Natasha, mum to baby Tommy who tragically passed away with an undetected CHD, tells us her views on the test that could save your …read more

The Conflicting Emotions of a Heart Mum

29th November 2018 in BlogParents Blog

When we were first admitted into the Neo Natal Intensive Care Unit and Elijah was diagnosed with Tetralogy of Fallot, I couldn’t take it in. …read more

The Next Chapter As A Heart Mum

21st November 2018 in Blog, Your StoriesParents Blog

For the last couple of weeks we have been looking around primary schools for Elijah who is due to commence school in September 2019. I …read more

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Your Stories

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