Even though our small charity is facing our toughest months in our 20 years we are still here… delivering support and services amidst the harshest …read more
Parents Blog
Your baby needs open heart surgery
These were the words that we heard on June 5th this year. The words that took my legs and turned them to mush. The words …read more
The two hardest moments of my son’s heart surgery
In a new book, The First Breath, the author Olivia Gordon tells the story of how modern medicine saved her son’s life, and his open …read more
Why pulse oximetry testing is important to me – Natasha’s story
Below, Natasha, mum to baby Tommy who tragically passed away with an undetected CHD, tells us her views on the test that could save your …read more
The Conflicting Emotions of a Heart Mum
When we were first admitted into the Neo Natal Intensive Care Unit and Elijah was diagnosed with Tetralogy of Fallot, I couldn’t take it in. …read more
The Next Chapter As A Heart Mum
For the last couple of weeks we have been looking around primary schools for Elijah who is due to commence school in September 2019. I …read more
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