Eighteen year old Danielle shares her story of living with congenital heart disease (CHD) in order to give hope to parents of babies and young …read more
Tetralogy of Fallot
Christmas on the Heart Ward: Catherine and Rafe’s Story
Heart mum, Catherine, shares her emotional story of what it was like to spend Christmas in hospital with her son Rafe, after he had surgery …read more
Tetralogy of Fallot: Rafe’s Story
Rafe’s heart condition, Tetralogy of Fallot (TOF), was diagnosed at Catherine’s 20-week scan. She has recorded their story in three parts, which you can watch …read more
Elsie’s Story
Jade’s daughter, Elsie, was born with a number of heart defects, including tetralogy of fallot (TOF). This is their story:
Tetralogy of Fallot: Roxy’s Story
Rebecca found out that her daughter had a heart condition, Tetralogy of Fallot (TOF) at her 20 week scan. Roxy was born during the coronavirus …read more
Tetralogy of Fallot: Noah’s Story
Noah was born with Pulmonary Atresia and Tetralogy of Fallot, while his twin, Finn, is heart healthy. Here, mum Kirstie tells their story
